The dreaded MRI is tomorrow. I'm nervous. Very nervous. I hate seeing him sedated. I hate having him straddled to be sedated. I hate watching him look right into my eyes, screaming. Screaming silently with pain. His eyes are begging me, pleading with me, to stop them. I hate everything about tomorrow and I'm not even at tomorrow yet.
A boy with no voice. No voice to let me know what's going on inside his mind. What he wants. What he needs. A boy with no voice. But he is trying so hard. A boy with no voice yet his eyes says so much. A boy with no voice, but his cuddles are a million times no a gazillion times worth more than the words I love you. A boy with no voice.
I just want this MRI over and done with. I know that we have to embark on the same journey over and over and over. I know that we are doing this for his own good. I know. I know but I still hate it. I still hate to see him suffer. Suffer even if its just for a few hours. My little boy. My little baby boy. But I know, he will be my hulk. Yes. Just like last time. My Incredible Hulk...
- Neurotic Iraqi Mom
- Im a mother. A mother to two beautiful twin boys. My boys are my world. Unfortunately one of them is very sick. Battling with seizures, Neurofibromatosis 1 (NF1) and many other issues including Autism. But his drive to learn, his drive to assert his presence is what pushes me to find a cure. A cure for the incureable. Here I am, Playing God. Playing God to him, to my Tuti, to his brother, and most of all to our family. Im just a mother, a mother who is playing God to my Tuti. My Tuti Fruiti